Rose Thrives

I’m a member of the subreddits r/hagfashion and r/positivity, and there was this one woman who was a very frequent poster in both. Her username everywhere is RoseThrives. She’s severely disabled, living locked away and on a permanent ventilator and catheters, but she’s always so friendly and positive. She celebrates everything she could in her life and shares her thoughts and feelings and beautiful fashion. She loves rainbows and bright colors. She has some isopods that she loves and cares for, and she posts them a lot too.

Rose really lives up to her name — a beautiful person who makes everything around her more beautiful by simply existing.

I don’t know her personally, and yet, it kind of feels like I do. She’s just that involved in her online communities. I interacted with her a few times and her positive attitude and fashion sense always made me smile. I’m certainly not the only person who feels this way; people in these communities love her a lot even if they don’t actually know her. I can only imagine how the people who know her “for real” feel about having her in their lives.

Rose has passed away. About a month ago she was moved to hospice, and 3 days ago it was announced that she’s gone. She was only 25.

Her final wish was to marry her best friend, and she did so in hospice, just a couple weeks before passing.

I’m completely heartbroken. I’m sitting here sobbing over someone I didn’t personally know. But Rose was truly a bright light in this world, and even up to the end she was so positive and beautiful. The world has lost something truly special.

Rest peacefully, Rose. You will be forever missed by your loved ones and internet strangers alike. Thank you for sharing your light with the world.

My Musical Journey

Content warning: Vague mentions of emotional abuse of a child/teenager by a teacher.

 

Maybe I should actually talk about my experience learning to sing. I don’t know if it’ll help me get over my nervousness, but hey. I’ve barely even talked about this with my own husband, which I don’t think is great. I imagine it just feels like I was leaving out something important.

My actual musical journey began with learning to play the piano when I was about 6 years old. Opa and Oma had just gotten me away from my abusive/neglectful mother after she had abducted me for about two years, and I think as a coping mechanism I took to listening to Opa’s records of classical music. He was a music collector so he had almost every record (and 8-track) you could think of. Classical music was the most calming to me. The social worker I was seeing thus figured that learning to play the piano would be therapeutic for me, and I was excited that I could learn to make those beautiful sounds I heard on Opa’s records. Piano is pretty easy for young children to start learning anyway.

Opa promptly signed me up for lessons at the Columbia Arts Academy in Columbia South Carolina and bought me my own piano.

I can’t really remember the name of my piano teacher, I think it started with a C? She was a fairly young woman as far as I recall, and very gentle and encouraging. She apparently worked with a few kids who were coming from difficult situations, so she was always so kind. I wish my memory was better for this because I really liked my piano teacher a lot. 🙁

The first piece I “mastered” on piano was Für Elise, and to this day I think I could play that with my eyes closed. (Probably not really, but you know.)

I learned piano for a while, but eventually became enamored with acoustic guitar. Opa, encouraging as always, immediately also started me in guitar lessons at the same academy and bought me a guitar. My guitar teacher was a man who supposedly used to play in a band, but he didn’t like to talk about himself much.

(As a side note, I really loved playing piano and guitar. For obvious reasons my piano could not come with me when I eventually moved in with my husband, but I deeply regret that I did not take my guitar. RIP guitar.)

I also took ballet for a bit, but I didn’t stick with it super long because it was exhausting.

Eventually I learned about opera. I don’t really remember what age I was but I believe the first opera I learned the story of, and thus became obsessed with because I am above all a lover of stories, was Bizet’s Carmen. I was like, wow, something can have beautiful music and an interesting dramatic story! Amazing!

So, I told Opa I wanted to learn to sing. I already sang along with all my Disney casettes anyway, so clearly it was something I loved doing. I even occasionally put on little performances for Opa and Oma with my Giant 90s Casette Player/Recorder as my orchestra, and I made my own tapes with that same recorder by singing into some cheap children’s microphone. I even recorded some songs in German so Oma could understand what I was singing.

My love of singing was intense enough that I took my silly performances very seriously. I dressed up as different characters, or sometimes just repurposed my ballet outfit, and had Opa and Oma sit and be my supposedly-rapt audience, complete with a clunky flashlight propped up on something to act as a spotlight. I made programmes on construction paper and illustrated them with Crayola supplies.

I kind of cringe thinking back on it, especially with how insistent I was that they watch and enjoy my performance. But I try to remind myself that it’s actually very wholesome. I was a kid who was passionate about something, and I was lucky to have loving and supportive grandparents who believed in my talent.

Apparently deciding that he wasn’t already wasting enough money on my passion-collecting, Opa signed me up for singing lessons too. Since I was still quite young, I didn’t start with opera, but instead musical theater and pop (it is generally discouraged for someone to start singing opera before a certain age). I also joined my school choir.

I think I was around 11 when I finally switched to learning opera. I needed to have a different teacher for that, and that was when I was given to Nancy. I don’t want to fully name-and-shame her, because she is now deceased, and that just feels disrespectful.

Nancy was a former opera singer, and from my recollection she was probably around 50-60, but I’m not 100% sure because your perception of someone’s age when you’re young is Weird. She performed at The Palmetto Opera for a number of years as a primadonna mezzo-soprano, but she had some sort of falling out that I don’t recall the details of, left the opera house, and then struggled to get her career going again. She transitioned to teaching because, in her words, she “wanted to see someone succeed in a dying art”.

At first she only seemed very stringent to me. She would coach me on something, then have me try singing, and harshly interrupt me and have me try again without correction from her. I often did not know what I was doing wrong until several tries later, when I was already starting to feel embarrassed. I was always a sensitive person (autism etc), so when I would get upset over this, she would say I need to grow a thicker skin, that she’s only trying to help me get better, and that the “real world of opera” was much worse. I would be a failure if I couldn’t steel myself and take her awfully-presented criticism.

I did get better. She did actually teach me how to sing and perform. But every time I was in her lessons I just felt like I was being pressured to be perfect. When I got a bit older I realized that she was living vicariously through me, and only allowing me to do things exactly how she wanted.

Nancy would yell things at me like
“are you hearing yourself right now? Here, listen to this recording, do you think you sound good?”
“Imagine getting on stage and singing like this. Your audience will think you’re ruining their music.”
etc

When I struggled with finding my chest voice, Nancy took to almost punching me in the chest, yelling at me to open my diaphragm but not explaining what that meant or how to do it. And then I had a hard time taking proper breaths because, yknow, she just hit me, and she’d get mad about that too. When I finally did find my chest voice, rather than praising me or congratulating me or anything like that, she just said “well you definitely could not ever sing alto”.

That was always baffling to me because, yeah duh. I have and always have had a high pitch. No crap I can’t sing alto.

Once my singing got to a level she was seemingly pleased with, she started fully recording me. I don’t know what she actually did with those recordings, she just apparently took them home with her and I never got to see them. She would tell me to sing full pieces and record it like this, and I started feeling like I was some sort of mouthpiece for her rather than her student. She eventually told me that my singing was good now, but it was doubtful that I would ever be able to make a career out of it.

I remember at one point Opa wanted to hear me sing again, like when I put on performances as a kid. I tried, I stood there and prepared to sing Ave Maria for him, but I started shaking and when my voice wouldn’t come out I just cried.

Nancy had quite effectively ruined my confidence and dulled my passion for singing. When I was 18 or 19 I got braces, which made my mouth very painful and gave me a bit of a lisp for the time I had them… so I figured this was my opportunity to quit. I ghosted Nancy and never saw her again, and for a long time just did not talk about all this.

I’m not here to defend her, especially not after my husband kind of helped me realize/admit she was abusive (and creepy). But as I said, she did teach me things.

She helped me find my fach (light lyric soprano at the time but now I qualify more for lyric coloratura), and helped me learn breath techniques. Her methods of doing so were bad, but I did eventually learn operatic technique and proper body posture for singing, and I eventually found my chest voice too. Then she taught me how to use my different voices (chest, head, falsetto, etc) to properly expand my range. She taught me how to easily do overtones, which I think is important for opera. She had me practice arias, and did tell me (eventually, again) that I achieved singing them.

Since I started singing young, my fundamentals (such as note and key recognition, music theory, and reading music) are in musical theater, but I don’t want to say I didn’t learn from Nancy. Especially since I wanted to focus on opera.

 

That Time I Helped A Book Get Published

I’ve been what you would classify as “an artist” for pretty much my entire life. Or, at least, as long as I could hold a pencil. As soon as I even vaguely figured out how to make a picture transfer from my brain onto paper (or whatever surface, including the walls, and woe betide anyone who tries to clean that away), I completely unloaded on the world.

Not much of my art survived until now, but here’s a few from I think around when I was 8 or 9 years old. Forever stuck in the ¾ angle facing viewer left.

image

That said, I was never much of a fanartist; I’ve always preferred to create original characters, either that exist in series I was a fan of (which I GUESS is a type of fanart? but not really what people think of when they say fanart) or I would make up entire worlds and populate them. I would make up stories to go with this too, and often made either comics or pseudo-books out of them which I just stapled together. Some things never change, really.

I would even LARP my stories all by myself (I was every character), complete with costumes and background music that was usually comprised of the soundtracks of Disney movies, video games, and later anime, which I would blast from my awesome 1990s audio player.

image

(I also had a Discman eventually but I have more memories of this thing)

When I learned how to, I would even make like mixtapes from the songs I used to make up my story’s soundtrack. I would pretend(?) that these stories were “real” as in they were actual cartoons or whatever that I was a fan of. I didn’t have any friends so it’s not like I shared these things with anyone, but that didn’t really stop me. I simply talked to myself about them and wrote my own critic reviews and “episode summaries”.

I really do not know how I was not screened for autism when I was a child, but whatever, I’m here now.

Drawing and making up stories and such took up pretty much all of my time that wasn’t already taken up by video games or books.

I was even drawing in class. To be honest I was a terrible student — I never really paid attention to anything unless it happened to be about something I was already hyperinterested in, and I subsequently did not give a flying hoot about grades. Instead of doing classwork or, yknow, listening to my teachers, I would be drawing. Some teachers caught on to the fact that I was drawing, and for those classes I switched to pretending to be taking notes or doing work but I was actually writing about my OCs.

Anyway, all this is to say, one of my teachers really liked my drawings, even though they weren’t really any better than typical child doodles in my opinion.

I don’t fully remember what grade this was, maybe 2nd or 3rd? This teacher was supportive of my drawings even though it was technically disruptive of my learning. She’d ask to see what I was drawing and would talk to me about it, though I wasn’t ever really keen on talking about it with her, and sometimes she asked me to draw something for her. She really liked Mickey Mouse so it was usually him.

One day this teacher told me she was writing a children’s book, but she needed an artist to illustrate it. So she asked me if I wanted to be the illustrator for her book. I said yes, and she and I worked together on the book for I think a couple months? I can’t fully say what the book was about, all I remember is that it was about a little girl with freakishly big pigtails. I don’t even remember the title, I wish I could.

The book was eventually published.

It’s really funny to think that there’s a book out there that my 2nd or 3rd grade teacher wrote and little baby me illustrated, and I just have zero memory of what it is. I sometimes wonder how many people have read the book or bought it for their kids or something and I am just completely ignorant of it.

Happy 2022!

I’m a tad late but happy New Year! I truly, truly hope that 2022 is a good year for everyone, especially after everything that’s been going on the past two years.

This year I’m hoping to actually start on my webcomics.

[Archive] [April 27th, 2020] 2020 has been four years long and it’s only April

My husband and I began this year being so sure it was going to be “our year” — the one wherein things get better for us as a whole. And WOW is it setting out to prove us wrong so far.

This year has been the full force of the COVID-19 pandemic. I don’t mind the quarantine stuff and it really does not affect me personally (I like never leave the house as is), but I worry for everyone else out there, especially those close to me who are at risk. Not to mention the fact that my husband is an “essential worker” so he still has to go out basically every day. It’s been pretty stressful.

Not only that, but in February, our cat Sparky was diagnosed with lymphoma. A normally voracious eater, he stopped eating fairly suddenly, and after a battery of tests they determined that was why. We got him on chemo immediately and he’s now in complete remission(!!!!!!) so that is fantastic. He’s such a little champ <3 and I am so incredibly proud of him.

But boy howdy it sure did punch us in the face financially. I mean, Sparky is our baby and we will do anything for him, but it’s been rough.

Here’s hoping the year calms down soon, for everyone.

[Archive] [14 September 2019] Woes of unseen creatives

Lately I’ve been trying to get back into writing. It’s something I’ve always enjoyed doing, and I am in a constant state of having stories floating around in my head. Honestly it feels like a waste to have so many stories and not be putting them on paper, so to speak.

My biggest issue, though, is that I have a very hard time convincing myself that the stories I come up are worth telling, or that very many people would even want to read them. I’m fairly sure this is a feeling many authors struggle with, but I wonder how they overcome it. I have never been confident in the least, and I have never been able to reach any sort of audience outside my friends and/or people who already know of me — be it with art or writing or anything else. I have no clue how anyone does that. I find it extremely difficult to justify spending so much time and effort on something that only maybe 3 people care about to any capacity.

People will often say “do what you enjoy doing for yourself, because you enjoy it!” but I honestly think that mentality is kind of… dumb. To me there’s no point in doing something for myself; I might as well just keep it all in my imagination then. I want other people to notice and enjoy the things I create.

I wish I could just ask some prolific writers how they get over these feelings, or something. I’m still gonna try, I guess, it’s just very hard to scrounge up the motivation when I don’t know if it’s actually worth it or not. ;n;

[Archive] [26 June 2019] Grief

I learned yesterday that my granduncle and his daughter passed away earlier this year. She was 64 and he was 90—I have no real clue why she died, but I’m willing to bet that the grief took my granduncle. Their deaths were only a month apart, with her going first.

For my entire life, my granduncle lived in Virginia. Opa and I would take road trips to visit him often, and I have distinct memories of them loving to go out into the Chesapeake Bay to fish, using a boat that my granduncle viewed as his pride and joy. They would each load up a cooler with fish they caught which they would freeze and later cook. They were the type of brothers that didn’t have too much in common except this one thing, but this one thing was a special bonding point for them. In a way they both seemed like young men again when they were fishing and talking about their catches.

The last few years, my relationship with my granduncle was complicated. After Opa passed away, he lashed out and said some pretty mean things about me. Initially I felt… betrayed, I guess? I have never held anything but love for my granduncle, and even after hearing these things, I couldn’t bring myself to resent him. It hurt though, and I was left wondering if these were his true opinions of me.

Eventually I realized that couldn’t be how he truly felt. My entire life, he only ever showed me kindness and his own slightly rough version of affection. He loved cooking for me (I will never forget his famous chicken a la king) because I was super enthusiastic about how well he could cook. He always asked about me when he and Opa would talk on the phone, and if I was feeling up to it he wanted to talk to me too. I have a lot of good memories with him, so I reasoned that he didn’t actually hate me. That would be a heck of a long con.

He was grieving his brother. Grief can change people, it can make them do strange and terrible things that they would normally never dream of. Knowing that, I forgave him. And I never stopped loving him.

My therapist has told me that, often, grief can trigger memories of other losses. I’m finding that to be true here—losing my granduncle has just also made my mind replay the moments when I found out about my Opa’s death. And this is all happening not long after we lost one of our furbabies as well. It’s torturous.

I’ve lost a lot. There have been many companion animals that have graced my life who are now gone, and the family I grew up with is almost completely gone (there’s a greataunt who is the last one left). It’s a painful, hollow feeling, but I’m at least happy to have had them in my life in the first place. That’s a precious thing.

[Archive] [22 April 2019]

I’ve very gradually started on a slightly modified version of the Konmari Method. I say slightly modified because I personally cannot actually do the “purge everything at once” thing that the method truly calls for. I’m far too low-energy for that, even on my best days. But anyway, I’ve started collecting storage containers and boxes to put things in — to give things a home, as it were. I went to the dollar store recently and used a gift card from Christmas to buy a whole bunch of boxes.

Recently I also started to use a wrist brace because I’m apparently such a hardcore gamer (lol) that I’m starting to get pain in my wrists from playing so much. The braces really help though! I got one on Amazon but I actually found another at the dollar store when I went box shopping, and it’s very decent for only being $1. What are the odds!

I started writing in a physical journal again as well, to supplement my online one. It certainly helps with keeping track of my thoughts and activities on a given day, and I can write more private things in it as well that I don’t think I would want to share in detail with the Internet. For example, how insecure I am and the real extent of my insecurities. That’s something that’s best kept to myself, my husband, and my little diary.

Speaking of self-improvement and whatnot, Vyvanse is such a good medicine. It’s honestly being a life-changer for me. I feel so good when I take it, and it gives me so much energy and drive; I can actually stay awake through the day and get things done! When I don’t take it I honestly feel like a dead battery. I spend a lot of time sleeping and don’t have the energy to do anything. Of course, Vyvanse helps with binge-eating too — it makes my appetite significantly smaller and I care less about food. Thank you, Vyvanse.

I don’t know if it’s because of the medicines I’m on, my therapy, getting older, or just general improvement, but I’m becoming more in tune with myself as well. I used to think I have very blunted or mild emotions, like I either feel nothing or I feel it very mildly. But I’ve realized recently that that’s not the case at all. I actually feel everything so intensely that it was probably easier to hide my feelings by dissociating from them, which became a veneer of “I don’t feel much”. I’m learning now to just let myself feel my feelings, and through that I’ve discovered I’m a very emotional and sensitive person. It’s pretty weird and interesting.

Anyway today I’m gonna start going to the gym semi-regularly again! I wanna get more fit and strong — not that I specifically want to get strong, but stronger than the wet tissue paper that I currently am. Losing weight would be good too, especially for my health, but I mostly need to do this for my heart. Heart problems run in my family, so I need to take care of it. Lots of cardio!

[Archive] [6 April 2019]

 

So, I haven’t posted here in a while. I guess not much is going on, because I can’t iterate enough how uneventful my life is lol. I mean, I don’t really leave the house except for doctor appointments… Which I guess is pretty sad, and ideally I want to change that, but I’m not super focused on it at the moment.

The biggest thing that’s happened recently was that one of our guinea pigs, Muffin, got sick with what everyone believes to have been an upper respiratory infection. Now, this was terrifying. We’ve lost several pigs over the years, and one of them was even to a URI. And I don’t have human children, so my companion animals are the only babies I have, and I love them accordingly. So I was very, very scared — piggies are delicate little animals so I was basically convinced that we were gonna lose her.

But Muffin is a fighter! We got her put on Baytril, and since she refused to eat I had to syringe feed her Critical Care. She despised it, because of course she did. So she would wiggle and whine while I was trying to feed her, and the whole thing was just very stressful for everyone involved. After 2 weeks, she finished her course of Baytril and we had a follow-up with the vet, and she got a clean bill of health! And her appetite’s back! I’m happy beyond words that she toughed out the illness and that I was able to nurse her back to health.

She still has to gain back the weight she lost, but she’s out of the worst of it at least.

Other than that, like I said, not much is going on. I’m currently reading The Life-Changing Magic of Tidying Up by Marie Kondo, and I hope to eventually put the Konmari Method to practice. It’s very daunting though, especially for someone as low-energy as I am. I hope that, if nothing else, I can at least learn something from this and try to make adjustments of the method that work for me.

The truth is, I used to be a pretty bad hoarder. At one point there was so much stuff in my bedroom that you couldn’t see the floor and you had to jump over things to navigate, all surfaces had huge piles on them, and there were roaches and maggots. I’m happy to say I’m well past that particular point, but I think I still have some hoarding tendencies and that translates to just having a lot of stuff that clutters. While I’m not particularly unhappy with it, it probably should change.

I wonder if I should also keep a physical diary again, to help organize my more daily thoughts and whatnot.

[Archive] [27 December 2018]

I’m quite a bit late, but happy new year! I sincerely hope 2019 is a good year. I hope it brings good things, and that everyone is safe and happy. (。・ω・。)ノ♡

I also hope everyone had good winter holidays, whatever you celebrate. My husband and I celebrate a secular version of Christmas, where it’s mostly a gift-giving and feel-good kind of holiday. I guess to us it’s something of a family oriented holiday, and it welcomes the winter in a nice and warm way.

Speaking of which, my husband took me completely by surprise (apparently I gave a very stunned reaction) by getting me a Switch this year. I’m still kind of in disbelief; to be honest I was prepared to sell my car and use some of that money to buy one, as silly as that might sound. Needless to say it was amazing gift, even though I do feel awful if people spend too much money on me.

Either way, that and all the other gifts, and the family dinner, made it a very lovely Christmas. I’m still recovering from the holidays (all the socializing and whatnot is horribly exhausting) but I’m in a pretty happy place right now ♡